Someday vs. now…..

I’ve talked a lot this week with my loved ones about not wasting a moment of our lives. Oftentimes, we “someday” ourselves to the extreme, putting plans on hold and filing them under “maybe someday.…”

There are, of course, some things that must land in that category. Like saving money for a home or car, planning a vacation, enrolling in a class. Any number of big ticket things.

But sometimes, we put off little things – simple things – that have the potential to bring us joy. Contacting an old friend. Taking a walk. Enrolling in a free or low cost class to learn a new skill. Getting a tattoo. (Although that might land in the “some day” category, but I hope you understand my meaning).

Don’t waste time. Don’t lose the chance to do something amazing that enhances your life. Tell that special person you love them. Thank the person who helped you through a bad experience. Say hello to a neighbor. Connect with nature. Spend time in a bookstore. Take a stroll through your local library. Get your library card renewed! And on and on.

Life is too short, too fragile, to keep putting things off until “someday.” I want each of us to make the most of every single day, even with the obstacles we face and rocks in our backpacks. No one is free from hardship. But if we reach for the good stuff, if we can try to find the joy amidst the pain, our lives will be so much better. I’m not saying it’s easy, but I am saying that it’s worth it.

Activate your life to the best of your ability.

Wishing each of you a week filled with new adventures, plenty of “now” opportunities, less “someday” moments, and everything good. Here’s to now. Here’s to all of you.

Peace and painlessness,

Beck ❤️

#thisiswhatsicklookslike #strokesurvivor #rsd #crps #arachnoiditis #autoimmune #migraine #sacroiliacjoint #facetjoint #backpain #medicalmarijuana #carpaltunnelsyndrome #cubitaltunnelsyndrome #patientadvocacy #painintheBECK #phantosmia #dextroscoliosis #thoracickyphosis#lumbarlordosis #meralgiaparesthetica #herestohope #gratefulalways

Deep breaths…..

Yesterday, my husband and I went into the city and had a bit of an adventure.

We’d scored free tickets to a Broadway show and then walked to the High Line (www.thehighline.org) (a historic, elevated rail line that was transitioned into a public park on the west side of Manhattan), and then to Hudson Yards. We’ve always loved walking the High Line. In addition to it being a beautiful green space, there are always pieces of art on display throughout. Yesterday was no exception. In fact, I think I saw one of my favorite art pieces to date.

“Old Tree,” by artist Pamela Rosenkranz deeply resonated with me.

As I looked at it from all angles, I felt so many things. To start, as I stared at the roots, I felt grounded – grounded in the power of myself. Of my own physical body. Does that make sense? And I was reminded of how much is happening within our bodies to keep us functioning every single day. The blood flowing through our blood vessels, the oxygen we’re taking in, the carbon dioxide we’re releasing. The massive energy that the factory of the human body generates every second of every day. All of our parts working to keep us breathing and moving and living. I was struck by all of that has I stared at this beautiful “Old Tree.” Yes, even though some of my parts are broken or damaged, I felt powerful. I walked away feeling empowered, empowered to be more ME.

And, amongst all of that goodness, I could almost imagine the clot that caused my stroke, moving through the limbs of the tree. It was a lot to take in and at the same time, not enough! I could have stared at that piece for hours and still found inspiration.

The pictures don’t do it justice. The color was so bright, especially against the background of the buildings. Maybe that’s part of why it’s such an electric piece.

I loved it. And I’m filled with gratitude for all of the creators we interacted with yesterday. From the show (“The Heart of Rock and Roll,” which was a lot of fun), to the exquisite gardens of the High Line, to the pieces of art along the route. I loved all of it.

I took a few deep breaths as I stood near the “Old Tree.” And all I could feel was joy.

Here’s to that. Here’s to the makers. Here’s to all of you.

Wishing you a safe, low pain weekend and week to come.

Peace and painlessness,

Beck ❤️

#thisiswhatsicklookslike #strokesurvivor #rsd #crps #arachnoiditis #autoimmune #migraine #sacroiliacjoint #facetjoint #backpain #medicalmarijuana #carpaltunnelsyndrome #cubitaltunnelsyndrome #patientadvocacy #painintheBECK #phantosmia #dextroscoliosis #thoracickyphosis#lumbarlordosis #meralgiaparesthetica #herestohope #gratefulalways #thehighline #pamelarosenkrantz #theheartofrockandroll

Old Tree, Pamela Rosenkranz, 2023

So this happened……

Okay, I didn’t want to cloud Mother’s Day for myself by going through the mess of the previous week for the blog. But, as this is a regular Sunday, I can share the story.

So, on May 3rd, we had to do a bit of traveling. We flew and then drove a bit. On Saturday, May 4th, I was awakened by a massive spasm in my left leg. It felt like a charlie horse in my calf and a shin splint in the front of my leg. All of that topped off by a separate spasm in my toes, pulling them up in an unnatural way that required me to physically flatten them out on the bed. It was so painful, it scared me.

I had smaller spasms along the way, but mostly it was a tight, twisted nerve pain going up through my calves. And it was worse in the right leg.

We were back home on Sunday afternoon. All was well until Monday evening. I was sitting in the living room, talking to my husband and our gal and went to stand up. I was forced back into my seat by a massive spasm in my right leg that lasted a few minutes. I would never have wanted them to see that happen. The pain was unreal. I hated having witnesses to it, but all I could do was wait it out. It was only minutes but felt like an hour. The same thing happened again on Wednesday. The twisted nerve pain continued through the week.

I was fortunate to have my injection follow up appointment scheduled for early Friday afternoon. We had a good visit and they examined my legs. My doctor said, “I’m sending you for an ultrasound to rule out a DVT.” I asked him when, he replied, “right now!” I couldn’t believe it. He said that with my history and the current pain, he couldn’t risk sending me home on a Friday afternoon without making sure I was okay. As freaked out as I was – because a blood clot did cross my mind – I was aggravated at having to get the test done right then

Then he said that my husband and our gal “wouldn’t thank” him if he sent me home without checking me for blood clots before the weekend. He was right.

He called the radiology department himself and said that he had a patient who needed “an urgent scan to rule out DVT’s.” They booked me for 5:30 that night.

Thankfully, I brought a book with me. I killed a little time getting a coffee and then headed over to the hospital. When I arrived, they must have had a cancellation, because the woman at the desk said, “I think we can bump up your time slot. I’ll have you in the room in the next 15 minutes.” I thanked her and took a seat.

The sonogram was thorough and – thankfully – negative. Phew. When I asked when I’d get the results, the technician said, “oh, I’ll tell you immediately. Because when I’m done here, I’ll either be sending you home or to the hospital for treatment.” 🥺

But it didn’t come to that. Thank goodness.

And then this week was my second session with the dentist. I returned on Thursday to finish the bondings. I have to say, eating is much more comfortable since he bonded my teeth. The nerves aren’t exposed so I can eat without agony. It’s been a game changer.

He also took the molds for my night guard. He said he doesn’t want me grinding my teeth to dust. Ick. I’m not thrilled about it, but it’s better than grinding my teeth at night.

So it’s been a painful, trying two weeks. But I’ve made it through, spasms and all. My pain management doc added two new meds to my roster. One has to be take every day to build up to a therapeutic level. The other one can be taken on the spot.

Anyway, the nerve pain was exceedingly better this week. I don’t know if it’s just calmed down, or if it’s because of the medication. Either way, I’m so relieved. It was stopping me from walking more than a few blocks.

So that’s what happened. Every now and again, I’ll get a nearly unmanageable pain week. But I power through because I spent years like that, 24/7. So having bad flare ups and living with mostly managed daily pain feels so much easier. I’ll take it.

Here’s to getting relief from the pain. Here’s to a calmer week ahead. And here’s to each of you. Thank you for coming with me on this journey.

Peace and painlessness,

Beck ❤️

#thisiswhatsicklookslike #strokesurvivor #rsd #crps #arachnoiditis #autoimmune #migraine #sacroiliacjoint #facetjoint #backpain #medicalmarijuana #carpaltunnelsyndrome #cubitaltunnelsyndrome #patientadvocacy #painintheBECK #phantosmia #dextroscoliosis #thoracickyphosis#lumbarlordosis #meralgiaparesthetica #herestohope #gratefulalways

For my mom, my sisters, and my gal……..

This week, I just want to send up a message of gratitude.

Here’s to the moms, the grandmothers, the stepmothers, aunts, godmothers, sisters, teachers, mentors, fur mamas, and friends. Here’s to the dads who serve as both father and mother. Here’s to the educators who are sometimes the only maternal or caring figures in someone’s life. Here’s to all of the amazing people in our lives who have

Here’s to my mom, the most incredible woman I am blessed to know. Here’s to her strength, courage, knowledge, and general fabulousness. Here’s to my sisters – a group of incredible women who have helped and guided me in countless ways. And here’s to my gal, for whom I’ll be grateful for the rest of my life. You are pure magic.

Here’s to all of these wonderful people in our lives.

Wishing all of you a safe, low pain, peaceful week to come.

Peace and painlessness,

Beck ❤️🌸

#thisiswhatsicklookslike #strokesurvivor #rsd #crps #arachnoiditis #autoimmune #migraine #sacroiliacjoint #facetjoint #backpain #medicalmarijuana #carpaltunnelsyndrome #cubitaltunnelsyndrome #patientadvocacy #painintheBECK #phantosmia #dextroscoliosis #thoracickyphosis#lumbarlordosis #meralgiaparesthetica #herestohope #gratefulalways

Everyday magic……

The extraordinary flowers I see every day. The laughter of friends. Dogs, (because, come on: DOGS!). Suddenly running into a friend you haven’t seen in forever. Too many other things to list. It’s all a part of the magic. At least it is for me.

Perfect example: the eastern redbud.

I adore these trees because they look like every other tree most of the year. But for 2-3 weeks every spring, they bloom and turn positively fabulous shades of pink and purple. And then it’s done. They return to life among the other trees, almost as if that blooming hadn’t happened. A Cinderella moment in nature.

I’ve tried to take pictures of them, to attempt to capture what those colors look like. No picture I’ve taken has captured the depth of those shades. It just reminds me of a magic trick! Now you see it, now you don’t.

Butterflies are magical too. A few weeks back, we had one of the first truly warm days of the season. I was walking my buddy and counted 7 butterflies! That’s unusual. Now, I’m a person who finds symbolism and beauty in things like that. A butterfly is never simply a butterfly. Think of that what you will, but I take it as a message. A hello from a loved one. And that brings me peace.

I adore dogs. I love it when a dog chooses me, when they decide that I’m worthy of a nose boop. In my mind, it’s because they’ve judged me to be a good person and are trustworthy. What a ranking by such an esteemed judge! I’ll take it.

Maybe I make it all more than it is, but why not find the song in the air? The beauty in the leaf that lands in front of me? I’m a person who actively searches for all of this because it brings me joy. I want to immerse myself in life’s good stuff because life itself is hard. It’s painful. If I can enjoy the flowers on my walk, then maybe I won’t feel the way my sacroiliac joint is locking so acutely. Maybe I’ll notice my leg spasms less.

Please try this, wherever you are. I’m not saying, “just ignore all of the pain you’re in and skip through the day.” I couldn’t and wouldn’t be so ridiculous. But I want you to try and take a look around, wherever you are, and let the beauty find you. See the goodness, whenever you can, and allow the endorphins to bring you some relief. I promise I’m not discounting the pain and stress of every day. I’m simply encouraging everyone to let some good seep in. It’s out there, we just have to be willing to see it. ❤️

As for me, I will be perpetually overjoyed to see my favorite tree. As of this blog, our local redbuds are embarking on their return to green.

I’m a positive person. I can’t help it. Despite all of the bad that happens in the world, I want to find joy. I’m hungry for it. It makes the physical hurt less.

For my efforts, the universe sees fit to reward me with so many beautiful memories – flowers, dogs, trees, and everything in between.

And I’ll be forever grateful for all of that everyday magic. ❤️

Wishing you the same.

Peace and painlessness,

Beck ❤️

#thisiswhatsicklookslike #strokesurvivor #rsd #crps #arachnoiditis #autoimmune #migraine #sacroiliacjoint #facetjoint #backpain #medicalmarijuana #carpaltunnelsyndrome #cubitaltunnelsyndrome #patientadvocacy #painintheBECK #phantosmia #dextroscoliosis #thoracickyphosis#lumbarlordosis #meralgiaparesthetica #herestohope #gratefulalways

Que será será……

I was sitting here with my little buddy, on a shaded park bench, replaying the weekend.

I rested from the injection and dental work. Then, on Sunday, my husband and I both felt like we needed a big walk. So we had an adventure on one of our longer routes. It was slightly chaotic, but I attribute it to the beautiful weather. The problem is when people are walking on the same paths as those riding bikes, skateboards, scooters, etc. and no one is paying attention to anyone else on the path. It’s like an advanced and scarier game of “Frogger.”

But, today, as I sat with my buddy, I remembered the one thing I hadn’t done yesterday: I never published my blog. 🤦🏻‍♀️

You all know how much that upsets me, missing my weekly deadlines. But I can’t undo it, so why get upset? It doesn’t serve a purpose. And the more I thought about it, the more I realized that publishing the blog I’d planned for yesterday next weekend actually works out better. We’ll be on the road, so I won’t have the time to really work on the blog.

So that’s that. Life happens. Life happened! And I’m okay with that. Shocker, I know. 😂

Wishing each of you a calm, low pain week. Here’s to rolling along, even when our plans change unexpectedly. Especially then. And here’s to all animals that I don’t want

Peace and painlessness,

Beck 😂

#thisiswhatsicklookslike #strokesurvivor #rsd #crps #arachnoiditis #autoimmune #migraine #sacroiliacjoint #facetjoint #backpain #medicalmarijuana #carpaltunnelsyndrome #cubitaltunnelsyndrome #patientadvocacy #painintheBECK #phantosmia #dextroscoliosis #thoracickyphosis#lumbarlordosis #meralgiaparesthetica #herestohope #gratefulalways

Out and about on a Friday evening….. one of my “mores”………

I had the opportunity to do something incredible on Friday night AND my husband came with me, which made the whole thing even better.

A few weeks back, I had seen a post by one of my costume industry heroes – Marc Happel, Director of Costumes for the New York City Ballet. He released an exquisite book (published by Rizzoli) in September 2023, New York City Ballet: Choreography and Couture.

My gal got the book for me as a Christmas gift and I had planned to attend two separate book signings. I missed the first because I was sick. The second one was on a day when I’d had a follow up appointment with my pain management doc. I was too tired to stay in Manhattan until the time of the event, so I returned home incredibly bummed out to have missed it.

Well, back to the post from a few weeks ago. Marc Happel was coming to the National Arts Club for a talk about his book! It was also a free event!! I just had to reserve my spot.

When we arrived, we were enamored with the beauty of the historical building. If you ever have the chance to attend an event there, I highly recommend that you go.

The talk was so fabulous. Not only had he signed my book at the start, but he was gracious enough to pose for a picture at the end of the talk. I was so grateful. To say that I was starstruck is putting it mildly. But I surprised myself by being able to put a sentence together when we spoke, so there’s that.🤦🏻‍♀️😂

Mr. Happel is extremely kind and funny. Meeting him was next level for me. I was so afraid something would go awry for me this time that no one even knew we were going. I was too nervous to mention it. Needless to say, our gal was thrilled that 1) I got to meet him and 2) that my husband and I were having an evening out. We’re truly homebodies at heart, so this was big. And since this coming week is full of medical appointments, I was so happy to do something fun and magical.

It was such a wonderful experience.

When you can take a chance, get out in the world, and experience a “more,” DO IT!! You’ll be so happy you did.

Here’s to more. Here’s to adventures. Here’s to Marc Happel. And here’s to all of you.

Peace and painlessness,

Beck ❤️

#thisiswhatsicklookslike #strokesurvivor #rsd #crps #arachnoiditis #autoimmune #migraine #sacroiliacjoint #facetjoint #backpain #medicalmarijuana #carpaltunnelsyndrome #cubitaltunnelsyndrome #patientadvocacy #painintheBECK #phantosmia #dextroscoliosis #thoracickyphosis#lumbarlordosis #meralgiaparesthetica #herestohope #gratefulalways #marchappel #newyorkcityballet

What we see……

I was walking my little buddy earlier this week and he decided to pull me along a different route. Occasionally, he sits down wherever we are to people watch or stare at the squirrels and/or birds. I’m used to him doing this. And for a tiny, 5lb dog, he’s remarkably strong about not wanting to move until he’s good and ready, 😂. I can tug on the leash and say, “let’s go!” And he will simply dig in and not react. 😂

Anyway, we were in the midst of one of these moments and I happened to look down at the grass. It took me a second to understand what I was seeing there – it was a piece of fabric covered in sequins! What a fortuitous moment to pause!

I could hardly make it out, it had been walked/rained on that week and slightly buried by the various animals that go through the park on a daily basis. But there it was, glinting slightly in the sunlight. I was overcome with wanting to get a picture of it. Of course, that was when my buddy decided he was ready to leave the park. But I did get the picture.

[*Unfortunately, I’m unable to share pictures on WordPress, so I’ll give my WordPress readers a link to the picture on my Instagram:https://www.instagram.com/p/C5wa8osPAnf/?igsh=MWIxemZ3Mzl6bDdxNw==%5D.

It’s funny, it looked exactly like a costume we’d received many years ago, back at the school. A dance wear company heard about our program and decided to gift us with three huge boxes of costumes they had leftover from discontinued lines. It was a tremendous gift. Some of it we immediately donated since it was for much younger kids than the ones we worked with. Some was used in the show we had that season. And some I was able to take apart and recycle into other looks. It was fun to go through those giant boxes. Such an enormous treasure!

It was in one of those boxes that I came upon a costume comprised of three separate pieces. As a whole look, it was too small for our kids. But taken apart, it made fabulous accessories – a scarf, a belt, even faux jewelry.

But it was similar to that piece of fabric. A champagne colored mesh with matching sequins. So sparkly and beautiful. I had a moment, staring down at the fabric in the park, when I wondered if it came from our old costume cabinet at the school. Then I laughed at myself for even thinking it.

But then my mind went in another direction. How often are we able to find the beautiful in life? The shiny, sparkly bits among the dirt? Life gets ugly and painful and there isn’t a person alive who doesn’t experience that. On weeks when our rock backpacks get super heavy, we can’t always see the good around us – if there even is good to be seen.

And yet, sometimes, the good finds us. When we least expect it, ✨there it is✨. I think I was meant to look down at that moment. The universe gave me that gift.

I found that happening a few times this week. Once, with the fabric. A couple of other times, with unexpected sightings of beautiful flowers. I was so taken by them that I had to get pictures. (WordPress readers, they’re going to be with the earlier link). I even had two separate sightings of cardinals! They were too fast for me to get pics of.

Those moments made me smile. I couldn’t help myself! I actually felt myself get emotionally lighter. These things surprised me. When I was lucky enough to be a witness, I let them in as the gifts that they were. My joy level was high.

Some days, it’s easy to do that. Some, not so much.

Even I am not always open to those happy, sparkly bits of life. Sometimes I’ll see something amazing, but can’t gather the energy to react like I did this week. I’ll try to file them away for later. Too often, with my memory being the way it is, I’ll forgot about them. Occasionally, I’ll write a word or phrase down, in the hope that they’ll trigger the memory for me. But, maybe they’re just meant to be snippets of joy at that time – not a full-sized candy bar of a moment like the sequined fabric, flowers, and birds were. And I’m okay with that.

But, when you can, let those moments in. I’ve said it before and I’ll say it again and again: the joy will give you such an endorphin boost. It changes my whole attitude, even if it’s only for a little while. Any boost is a positive boost.

Let the light in when you see it. Let the joy in when you find it. And know that I’m wishing that for all of you every day.

Here’s to the joys, big and little. Here’s to finding fabulous sequined fabric unexpectedly. And here’s to all of you.

Peace and painlessness,

Beck ❤️

#thisiswhatsicklookslike #strokesurvivor #rsd #crps #arachnoiditis #autoimmune #migraine #sacroiliacjoint #facetjoint #backpain #medicalmarijuana #carpaltunnelsyndrome #cubitaltunnelsyndrome #patientadvocacy #painintheBECK #phantosmia #dextroscoliosis #thoracickyphosis#lumbarlordosis #meralgiaparesthetica #herestohope #gratefulalways